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Section 6
This chapter looks at various supports for families and how advocates and social workers can assist families and show them the kind of help that is available. Many agencies offer basic supports, such as information and referral, while others have more extensive services. The Family Support Services (and respective service providers) highlighted here include: Support Groups; Psychological Counselors; Respite Care; Recreation, Play, and Camps; Transportation; Residential Care; and Legal Supports and Advocates. Children’s and families’ legal rights are addressed.
How an Advocate Can Help
Providers of Family Support Services - Index
Alternative Sources of Funding for Families - Index
Women, Infants, and Children (WIC) Program
WIC Eligibility
WIC Offices - Index
Providers of Support Groups for Families - Index
Providers of Psychological Counseling - Index
Providers of Respite Care - Index
Providers of Recreational Programs, Playgroups, and Camps - Index
Providers of Toys - Index
Providers of Camps - Index
Camp Publications and Websites - Index
Transportation
Car Seat Safety
Passenger Airbags
Agencies with More Information about Car Seat Safety - Index
“Handicapped” Parking Permits
Purchasing or Renting an Accessible Van (or Specially Adapted Vehicle)
Port Authority Transit of Allegheny County (PAT)
ACCESS Transportation Services
Medical Assistance Transportation
Travel Training
Extended or Cross-Country Travel
Air Travel
Greyhound Bus Schedule
Amtrak
Driver’s Education for Students with Disabilities
Other Transportation Providers and Resources - Index
Residential Care
Schools and Organizations Offering Residential Options - Index
Disabilities and the Law
Knowing Your Rights
If You Think You Need an Attorney or Legal Advocate - Index
Other Legal Resources - Index
How to Find Help with Wills, Trusts, and Other Legal Concerns - Index
Guidelines for Communicating About People with Disabilities
How An Advocate Can Help
By Lisa Patchner and Dee Lisneski
The term advocate is borrowed from the legal profession and used to describe the role of a person or group who assists other people in obtaining services and information that all citizens are entitled to.
An advocate provides leadership in articulating a client’s needs or requests - often challenging the medical, legal, and educational systems - in order to provide the client all necessary and entitled services.
Advocates can be found in parent support groups or employed in social service agencies. Certain professionals - such as lawyers and social workers - are trained specifically in the role of advocate.
Many social service agencies also fund or appoint advocates to work alongside staff in providing services to
specific groups. The mental health association and ARC in your area can provide trained advocates to
assist you.
Private advocates also are available but are generally expensive. They can be contacted through parent support groups and social service agencies.
If parents or guardians desire to become advocates, they should connect with other parents who have similar needs. Attending parent and professional seminars, being involved in parent support groups, and networking with other individuals in similar situations are important. Knowledge is power, and the more informed families are about their child’s needs and available services, the better advocates they will be.
Due to increased parental rights and safeguards in numerous pieces of legislation - such as the reauthorization in 2004 of IDEA (Individuals with Disabilities Education Act) - families now are in an ideal position to assume the role of advocate for their child.
Statewide Organizations of Parent Advocates:
| Parent to Parent of Pennsylvania........................................................................................................ | 1-888-727-2706 |
| Disability Rights Network PA............................................................................................................... | 412-391-5225 |
| The Parent Education Network............................................................................................................ | 800-522-5827 |
| Parent Education and Advocacy Leadership Center (PEAL)......................................................... | 412-281-4404 |
If you would like to create an advocacy notebook for your child, call CONNECT Information Service (800-692-7288) and order a free copy of The Advocacy Notebook for Parents of Children with Attention Deficit Disorders and other Emotional, Behavioral or Learning Problems. No matter what a child’s disability, this guide will help families “build” a notebook that will be an invaluable tool in advocating for their child and other families.
(Source: Lisa Patchner and Dee Lisneski are both parents of children with special needs. Lisa also serves as Assistant Professor in the Department of Social Work and Gerontology at California University of Pennsylvania.)
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How a Social Worker Can Help
By Pat Bakich
Some people think social workers are found only in welfare offices and child abuse agencies. But you will find
social workers in almost any place where people have needs: hospitals, schools, counseling centers, adoption
agencies, private medical practices, and other human service agencies.
Social workers assist people from all walks of life to help them cope with the various stresses associated with
their situations.
Chances are there are social workers employed in facilities you have used (or anticipate using) for your child.
Social workers help people just like you.
How Do Social Workers Help?
1. First, they will assess the problem or need.
2. Second, they will determine - with the assistance of the client and other professionals - what the
appropriate plan of action should be.
3. Third, they will provide counseling and other direct services.
4. Fourth, they will link (or refer) clients to other services in their communities.
You’ll Find Social Workers In:
● Schools - with teachers and other professionals to help students and their families with various problems,
such as absenteeism; disruptive behavior; or emotional, personal, or social problems.
● Hospitals - counseling patients with serious illnesses and their families. Social workers help patients and
families work through emotional distress and find appropriate resources in the community that can provide
strength and encouragement. Here, the social worker is part of a team of physicians, nurses, and other health
care professionals.
● Counseling Centers and Private Medical Practices - offering individual, family, couple, and group
counseling or therapy to people who may be adjusting to stressful life situations, coping with illness, or
seeking personal growth. (Private counseling may need to be approved by your private insurer.)
How Do I Know if a Social Worker is a Professional?
The minimum qualification of a professional social worker is a BSW (Bachelor of Social Work) or an MSW (Master of Social Work) degree. A social worker also may be certified by the National Association of Social Workers (NACSW), which means he or she has an MSW, a minimum of two years experience in social work, and a passing grade on the NACSW exam. To be a Licensed Social Worker (LSW) in Pennsylvania, an individual must have an MSW and pass the state licensure exam.
How Do I Get In Touch with a Social Worker?
Many agencies offering services for children with special needs have a social work department, a social worker on staff, or access to social workers. Ask at your agency today or call: The National Association of Social Workers, Pennsylvania Chapter, 800-272-6279.
(Source: Summarized by Pat Bakich, a former social worker at the Allegheny Intermediate Unit 3, from “Social Work Answers,” a publication of the National Association of Social Workers, Pennsylvania Chapter)
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Providers of Family Support Services - Index
The following agencies provide various support services, including information, referral, training, literature, and
other resources. To receive many of the resources (other than basic information), families must meet eligibility
criteria.
| ABOARD.................................................................................................................................................. .............................................................................................................................................................. |
800-827-9385 412-334-1788 |
| Acoustic Neuroma Association/Neurofibromatosis 2........................................................................ | 724-941-7122 |
| Allegheny Family Network.................................................................................................................... | 412-246-2030 |
| Allegheny Children’s Initiative, Inc....................................................................................................... | 412-431-8006 |
| Allegheny County Health Department................................................................................................. Diabetes Control Program................................................................................................................ Maternal and Child Health Program............................................................................................... |
412-687-2243 412-247-7800 412-578-8000 |
| Allegheny Intermediate Unit 3 (IU 3).................................................................................................... | 412-394-5700 |
| Alliance for Infants and Toddlers, Inc................................................................................................... | 412-885-6000 |
| Alliance for the Mentally Ill of Southwestern PA................................................................................ .............................................................................................................................................................. |
800-AMI-SWPA 412-366-3788 |
| American Cancer Society, Southwest Regional Office..................................................................... | 412-261-4352 |
| American Diabetes Association (ADA), Western PA Area............................................................................................................................... .............................................................................................................................................................. |
800-DIABETES 412-824-1181 |
| American Heart Association, Pittsburgh Office.................................................................................. | 412-243-5393 |
| American Lung Association of Western PA........................................................................................ .............................................................................................................................................................. |
800-220-1990 714-772-1750 |
| American Red Cross, Southwestern PA Chapter, Foster Grandparent Program........................................................................................................... |
412-263-3163 |
| ACHIEVA................................................................................................................................................. | 412-995-5000 |
| Arthritis Foundation, Western PA Chapter.......................................................................................... .............................................................................................................................................................. |
800-522-9900 412-566-1645 |
| Autism Society of Pittsburgh................................................................................................................. ..........................................................................................................or www.autismsocietypgh.org |
724-856-7223 |
| Automated Health Systems, Inc............................................................................................................ .............................................................................................................................................................. |
800-543-7633 724-543-7633 |
| Blind Outdoor Leisure Development (BOLD), Western PA......................................................................................................................................... |
412-521-4385 |
| Pittsburgh Blind and Vision Rehabilitation Services......................................................................... | 412-565-5240 |
| Bower Hill Braillists Foundation........................................................................................................... | Write for information |
| The Carnegie Library of Pittsburgh...................................................................................................... Library for the Blind/Physically Handicapped............................................................................... .............................................................................................................................................................. |
412-622-3114 800-242-0586 412-687-2440 |
| The Center for Organ Recovery & Education (CORE)...................................................................... .............................................................................................................................................................. |
800-366-6777 412-963-3550 |
| Child’s Way.............................................................................................................................................. | 412-365-6065 |
| Children and Adults with Attention Deficit Disorders (CHADD)...................................................... | List of Affiliates |
| Children’s Hospital of Pittsburgh.......................................................................................................... Autism Center..................................................................................................................................... .............................................................................................................................................................. Child Development and Child and Family Counseling Center.................................................. Down Syndrome Center of Western PA......................................................................................... Enterostomal Therapy....................................................................................................................... Genetics, Medical.............................................................................................................................. Neonatal Intensive Care Unit (NICU)............................................................................................. PKU (Phenylketonuria) Program..................................................................................................... Pittsburgh Poison Center......................................................................................................EMER ..........................................................................................................................................Non-EMER |
412-692-5325 800-727-1507 412-692-6538 412-692-5589 412-692-7963 412-692-5345 412-692-5070 412-692-5030 412-692-8631 412-681-6669 412-692-5600 |
| The Children’s Institute.......................................................................................................................... | 412-420-2400 |
| Client Assistance Program (CAP)........................................................................................................ .............................................................................................................................................................. |
412-363-7223 800-525-7223 |
| Community College of Allegheny County (CCAC)............................................................................ | 412-237-4612 |
| CONNECT Information Service............................................................................................................ .............................................................................................................................................................. |
800-692-7288 717-657-5899 |
| Crohn’s and Colitis Foundation of America, Inc., Western PA Chapter.......................................................................................................................... .............................................................................................................................................................. |
800-627-6467 412-687-9775 |
| The Watson Institute............................................................................................................................... D.T. Watson Educational Services................................................................................................. LEAP Preschool................................................................................................................................. |
866-893-4751 412-741-1800 412-741-1800 |
| Disabilities Rights Network PA............................................................................................................. | 412-391-5225 |
| Easter Seal Society of Western PA...................................................................................................... | 412-281-7244 |
| The Emmaus Community...................................................................................................................... | 412-381-0277 |
| The Epilepsy Foundation of Western PA............................................................................................ .............................................................................................................................................................. |
800-361-5885 412-261-5880 |
| Every Child, Inc....................................................................................................................................... | 412-731-7477 |
| Family Resources................................................................................................................................... .............................................................................................................................................................. |
800-641-4546 412-363-1702 |
| Focus on Renewal Sto-Rox Neighborhood Corporation.................................................................. | 412-771-6460 |
| Guillain-Barre Syndrome Foundation International........................................................................... | 412-854-1186 |
| Health Agency Coalition of Western PA............................................................................................. | 800-800-5776 |
| HelpLine................................................................................................................................................... (Telephone information and referral center) |
412-578-2450 |
| Human Growth Foundation................................................................................................................... | 412-781-5162 |
| Huntington’s Disease Society of America, Western PA Chapter.......................................................................................................................... .............................................................................................................................................................. |
888-779-4372 412-833-8180 |
| Intestinal Disease Foundation, Inc....................................................................................................... | 412-261-5888 |
| Jewish Care Coordination Program..................................................................................................... | 412-521-3800 |
| Laughlin Center....................................................................................................................................... | 412-741-4087 |
| Learning Disabilities Association (LDA) of America......................................................................... | 412-341-1515 |
| Leukemia Society of America, Inc., Western PA and West Virginia Chapter......................................................................................... .............................................................................................................................................................. |
800-726-2873 412-395-2873 |
| Lifesteps, Inc............................................................................................................................................ | 724-283-8010 |
| Little People of America, Western PA Chapter.................................................................................. | 412-781-5162 |
| Long Run Children’s Learning Center................................................................................................. | 412-751-9022 |
| Lupus Foundation of America, Western PA Chapter, Inc................................................................. .............................................................................................................................................................. |
412-261-5886 800-800-5776 |
| Magee-Womens Hospital...................................................................................................................... | 412-641-1000 |
| The Make-A-Wish Foundation of Western PA................................................................................... .............................................................................................................................................................. |
800-676-9474 412-471-9474 |
| March of Dimes, Birth Defects Foundation, PA Chapter......................................................................................................................................... |
800-4-BABIES |
| The UPMC Mercy................................................................................................................................... ENCARE............................................................................................................................................. (Emergency Nurses Cancel Alcohol-Related Emergencies) MercyLink............................................................................................................................................ (Physician and Service Referral Network)..................................................................................... |
412-232-7388 412-232-8168 800-232-5660 412-232-5660 |
| Mon-Yough Community Services, Inc................................................................................................. Crisis/Intake........................................................................................................................................ |
412-675-8585 412-675-8480 |
| Multiple Sclerosis Service Society....................................................................................................... .............................................................................................................................................................. |
800-542-2413 412-469-7240 |
| Muscular Dystrophy Association (MDA) of Southwestern and Midwestern PA............................ | 412-823-4094 |
| Myasthenia Gravis Association of Western PA, Inc........................................................................... | 412-566-1545 |
| The National Alopecia Areata Foundation......................................................................................... | 415-456-4644 |
| National Association for Continence (NAFC)..................................................................................... .............................................................................................................................................................. |
800-BLADDER 864-579-7900 |
| National Health Information Center...................................................................................................... | 800-336-4797 |
| National Hemophilia Foundation, Western PA Chapter.......................................................................................................................... ..................................................................................................................................................EMER |
412-683-2231 412-209-7040 |
| National Multiple Sclerosis Society, Allegheny District Chapter................................................................................................................ .............................................................................................................................................................. |
800-FIGHT MS 412-261-6347 |
| Open Doors for the Handicapped of PA, Inc., Pittsburgh Chapter............................................................................................................................. |
412-766-3985 |
| Family Links............................................................................................................................................. | 412-343-7645 |
| The Partnership | |
| Parent to Parent of Pennsylvania......................................................................................................... | 1-888-727-2706 |
| Parent Education and Advocacy Leadership (PEAL) Center.......................................................... | 412-281-4404 |
| Pittsburgh-Mt. Oliver Intermediate Unit (IU 2)..................................................................................... | 412-488-4482 |
| Rheumatoid Society, Inc........................................................................................................................ | 412-371-8108 |
| Ronald McDonald House Charities of Pittsburgh.............................................................................. ..................................................................................................................................................EMER |
412-362-3400 412-362-7974 |
| Samaritan Counseling Center of Western PA.................................................................................... | 412-741-7430 |
| Scleroderma Agency of Western PA................................................................................................... | 412-681-3650 |
| Self Help Group Network....................................................................................................................... | 412-578-2450 |
| Sewickley Valley Hospital..................................................................................................................... | 412-741-6600 |
| Staunton Clinic........................................................................................................................................ ..................................................................................................................................................EMER |
412-749-7330 412-741-6600 |
| The Special Kids Network..................................................................................................................... .............................................................................................................................................................. |
800-986-4550 724-449-8320 |
| TECH-LINK Program of Pittsburgh...................................................................................................... | 412-237-2767 |
| Three Rivers Center for Independent Living....................................................................................... .............................................................................................................................................................. ......................................................................................................................................................TDD |
800-633-4588 412-371-7700 412-371-6230 |
| Trichotillomania Support Group............................................................................................................ | 412-366-8951 |
| UCP of Pittsburgh’s Community Living and Support Services........................................................ | 412-683-7100 |
| Mental Health America-Allegheny County.......................................................................................... | 412-391-3820 |
| United Ostomy Association, Pittsburgh Chapter................................................................................ | 412-261-3937 |
| The University of Pittsburgh Generations Together....................................................................................................................... Office of Child Development (OCD)................................................................................................ |
412-648-7157 412-624-7425 |
| Ventilator Assisted Children/Home Program, Children’s Hospital of Pittsburgh..................................................................................................... |
412-692-6494 |
| VNA HealthCare Services..................................................................................................................... .............................................................................................................................................................. |
888-696-8773 412-256-6910 |
| Washington County Day Care Services.............................................................................................. .............................................................................................................................................................. |
888-619-9908 724-228-6969 |
| Western PA Chapter of the Juvenile Diabetes Foundation.............................................................. | 412-471-1414 |
| Western PA Tourette Syndrome Association..................................................................................... | 412-331-8455 |
| YWCA of Greater Pittsburgh................................................................................................................. Child Care Partnerships................................................................................................................... .............................................................................................................................................................. |
412-255-1243 412-261-CARE 412-261-2273 |
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Alternate Sources of Funding for Families - Index
Many families who have children with special needs encounter expenses that are not covered by insurance or other benefits. Whether for a wheelchair lift, a communication device, a hearing aid, or a seeing-eye dog, securing funds can be a formidable challenge for a family.
The following is a limited list of alternative sources of funding, equipment, and services. Each source has
specific eligibility requirements. Please contact the sources to determine the availability of funds and specific
qualifications.
| Children’s Hopes and Dreams Foundation........................................................................................ Grants wishes to children with life-threatening illness. E-mail: chdf@juno.com |
973-361-7366 |
| Crime Victims’ Compensation Board................................................................................................... Compensation for medical costs and assistive technology to crime victims. |
800-233-2339 |
| Disabled Children’s Relief Fund.......................................................................................................... Provides funding for assistive technology and therapies. E-mail: dcrf@aol.com |
516-377-1605 |
| Easter Seal Society of Western PA...................................................................................................... Loans assistive technology to families. |
412-281-7244 |
| HEAR NOW............................................................................................................................................. Provides hearing aids and other services to individuals with hearing impairments.......TDD E-mail: jostelter@aol.com |
800-648-4327 303-695-7797 |
| Improvement Program of Allegheny County....................................................................................... Provides modifications to homes to accommodate residents with disabilities. |
412-323-6859 |
| Leukemia Society of America, Inc., Western PA and W. VA Chapter........................................................................................................................... Provides financial assistance to persons with leukemia, lymphomas,...................................... multiple myeloma, and specific myelodysplastic syndromes for related expenses. |
412-395-2873 800-726-2873 |
| The Make-a-Wish Foundation of Western PA.................................................................................... Fulfills wishes for children with a life-threatening illness............................................................. |
412-471-9474 800-722-9474 |
| Miracle Ear Foundation.......................................................................................................................... Provides hearing aids to children who are hearing impaired. |
800-234-5422 |
| Multiple Sclerosis Service Society....................................................................................................... Loans assistive technology to families........................................................................................... |
800-542-2413 412-469-7240 |
| Muscular Dystrophy Association of Southwestern and Midwestern PA......................................... Provides funding for assistive technology to those with neuromuscular disease. E-mail: mda@mdausa.org |
620-529-2000 |
| Office of Vocational Rehabilitation - Pittsburgh District.................................................................... Provides assistive technology devices and services needed for employment........................ |
800-442-6371 412-392-4950 |
| Otto Sussman Trust................................................................................................................................ Offers grants to residents of Pennsylvania and a handful of other states to assist with medical bills and other expenses for the severely ill. |
718-426-0831 |
| Pennsylvania Assistive Technology Foundation............................................................................... Provides low-interest cash loans to pay for assistive technology. |
800-204-7428 |
| Pharmaceutical Research and Manufacturers of America (PhRMA).............................................. Provides free medications from a large variety of pharmaceutical companies. |
800-762-4636 |
| Spina Bifida Association of Western PA............................................................................................. Loans assistive technology to families........................................................................................... |
724-394-9600 800-243-5787 |
| Sunshine Foundation............................................................................................................................. Fulfills wishes for children with a chronic illness. |
800-767-1976 |
| Telecommunication Device Distribution Program............................................................................. Provides telecommunication devices for those with hearing impairments.......................TDD |
800-670-7303 800-440-0347 |
| Department of Veterans’ Affairs............................................................................................................ Provides assistive technology to military veterans and their dependents. |
800-827-1000 |
| Variety the Children's Charity............................................................................................................... Provides mobility and enabling equipment for children with mental and physical disabilities. |
412-747-2680 |
| Vehicle Modification Programs Chrysler............................................................................................. Compensation for vehicle modifications are sometimes available from individual manufacturers based on certain restrictions General Motors.............................................................................................................................. Ford Corporation........................................................................................................................... Saturn............................................................................................................................................. |
800-255-9877 800-323-9935 800-952-2248 800-522-5000 |
| To research additional funding sources, contact: The Foundation Center, Carnegie Library of Pittsburgh, Oakland.................................................. |
412-622-1917 |
| The Pennsylvania Initiative on Assistive Technology....................................................................... | 800-204-7428 |
| The Special Kids Network..................................................................................................................... | 800-986-4550 |
(Source: Pennsylvania Initiative on Assistive Technology, and the Foundation Center’s “Guide to Individual Grants”)
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Medicaid Waivers
Support Services Waiver -- or simply “waiver” -- is a shortened term for the Medicaid Home and Community Based Waiver Program. This program provides funding for an array of services and benefits to individuals who might otherwise need institutional care.
The name “waiver” comes from the fact that the federal government "waives" Medical Assistance/Medicaid rules for institutional care in order for Pennsylvania to use the same funds to provide supports and services for people closer to home in their own communities.
In Pennsylvania, the Department of Public Welfare administers 12 Medical Assistance/Medicaid waivers and the Long Term Care Capitated Assistance Program. Each waiver has its own unique set of eligibility requirements and services. The individual must have limited income and assets in his or her own name. If eligible, the individual’s name is placed on a waiting list (which is usually long). Services are granted according to need and position on the list. Priority is given to individuals whose need for residential placement is critical, such as in the event of the death of a caregiver or closure of the institution where the individual resides. To apply, contact your county’s Mental Health/Mental Retardation office.
Types of Waivers:
AIDS Waiver
The AIDS Waiver provides home and community based services to eligible persons age 21 or older who have symptomatic HIV Disease or AIDS.
Attendant Care / Act 150
Information for mentally-alert Pennsylvanians with physical disabilities.
Autism Waiver
Pennsylvania has been approved for a first-of-its-kind federal waiver program to provide home and community based services specifically for adults with autism.
COMMCARE Waiver
Home and community-based program developed for individuals who experience a medically determinable diagnosis of traumatic brain injury.
Consolidated Waiver for Individuals with Mental Retardation
The Consolidated Waiver for Individuals with Mental Retardation provides services to eligible persons with mental retardation so that they can remain in the community.
Elwyn Waiver
The Elwyn Waiver provides community based services to eligible persons who are deaf, blind or deaf and blind, and who reside in the Valley View Facility or another residence in Delaware County.
Independence Waiver
The Independence Waiver provides services to persons with physical disabilities to allow them to live in the community and remain as independent as possible.
Infant, Toddlers, and Families Waiver
This waiver provides services to children from birth to age three in need of Early Intervention services who would otherwise require the level of care provided in an Intermediate Care Facility (ICF).
LIFE (Living Independence for the Elderly)
LIFE is a managed care program for frail elderly recipients who have been determined to need "nursing facility level of care" but wish to remain in their home and and community as long as possible.
Michael Dallas Waiver
The Michael Dallas Waiver provides services to eligible persons who are technology-dependent (i.e., requiring technology to sustain life or replace a vital bodily function).
OBRA Waiver
The OBRA Waiver provides services to persons with severe developmental physical disabilities, such as cerebral palsy, epilepsy or similar conditions.
Person/Family Directed Support Waiver
The Person/Family Directed Support Waiver provides services to eligible persons with mental retardation so that they can remain in the community.
Source: Pennsylvania Department of Public Welfare, www.dpw.state.pa.us/ServicesPrograms/MedicalAssistance/SuppServWaivers/
|
The Pennsylvania Medicaid Policy Center (PMPC) is an independent and non-partisan source of information about and analysis of the Commonwealth's Medical Assistance program. For more information, visit www.pamedicaid.pitt.edu/documents/waiver.pdf |
Women, Infants, and Children (WIC) Program
Funded by the Pennsylvania Department of Health, WIC provides free food and nutrition education for eligible
women who are pregnant, breastfeeding, or who have given birth within the last six months, as well as foinfants and children ages birth-5 years. WIC is particularly helpful if your child is prescribed a special formula or
nutritional supplement.
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WIC Eligibility
For an application, call 800-942-9467 or 412-350-5800
Pennsylvania residents who meet income guidelines and have a nutritional or medical problem are eligible.
For example, as of 1998 guidelines, a family of four earning under $30,433 per year qualifies for WIC. All
children with a Medical Assistance ACCESS card automatically qualify for WIC, regardless of their parents’
income. The application must be completed and signed by a physician and updated periodically to re-qualify.
Bring the completed form, recent pay stubs, and proof of Pennsylvania residency in person to your local WIC
office. Vouchers for food purchases are distributed every two months at WIC offices.
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WIC Offices - Index
| Allegheny University Hospital............................................................................................................... South Tower, 6th FL, 320 E. North Ave., Pittsburgh, PA 15212 (Pediatric Clinic) |
412-359-6885 |
| Alma Illery Health Center....................................................................................................................... 7227 Hamilton Ave., Pittsburgh, PA 15208 |
412-244-4755 |
| Arsenal (Frank B. Clack Building)........................................................................................................ 40th & Penn Ave., Pittsburgh, PA 15224 |
412-578-8165 |
| Hill House................................................................................................................................................ 1835 Centre Ave., Pittsburgh, PA 15219 |
412-392-4444 |
| Investment Building................................................................................................................................ 1st FL, 235 Fourth Ave., Pittsburgh, PA 15222 |
412-350-7240 |
| McKeesport............................................................................................................................................. Wander Bldg., 339 Fifth Ave., Pittsburgh, PA 15132 |
412-664-8870 |
| McKees Rocks........................................................................................................................................ 710 Thompson St., McKees Rocks, PA 15136 |
412-771-8268 |
| Northside.................................................................................................................................................. Rm. 204, 1300 Brighton Rd., Pittsburgh, PA 15233 |
412-323-6888 |
| South Hills................................................................................................................................................ 1100 Washington Ave., Carnegie, PA 15106 |
412-278-2510 |
| South Side............................................................................................................................................... Maul Bldg., 1700 Carson St., Pittsburgh, PA 15203 |
412-431-6795 |
| Springdale................................................................................................................................................ 830 Pittsburgh St., Springdale, PA 15144 |
724-274-6411 |
| Turtle Creek............................................................................................................................................. Westinghouse Valley Human Service Center 519 Penn Ave., Turtle Creek, PA 15145 |
412-823-1333 |
| Wilkinsburg.............................................................................................................................................. Suite 202, 807 Wallace St., Pittsburgh, PA 15221 |
412-241-3860 |
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Allegheny County Service Coordination Units - Index
Coordinate and provide services for individuals with Mental Health (MH) needs
| Allegheny East Mental Health Center................................................................................................. | 412-731-9707 |
| Family Services of Western PA............................................................................................................ | 412-221-4200 |
| Chartiers MH/MR Center....................................................................................................................... | 412-221-3302 |
| Mon-Yough Community Services, Inc................................................................................................. | 412-675-8300 |
| Mercy Behavioral Health North Shore Office............................................................................................................................. Birmingham Center............................................................................................................................ North Hills Office................................................................................................................................ |
412-323-4500 412-488-4040 724-933-8200 |
| Staunton Clinic........................................................................................................................................ | 412-749-7330 |
| Turtle Creek Valley................................................................................................................................. | 412-461-1004 |
| Western Psychiatric Institute & Clinic (WPIC).................................................................................... | 412-586-2900 |
| Allegheny Family Network................................................................................................................. 412-246-2030 Provides a support line for families of children with behavioral health challenges |
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Independent Support Coordination Units (ISCs) - Index
Coordinate and provide services for individuals with Mental Retardation (MR) needs
| Family Links Main Office, Pittsburgh...................................................................................................................... McKeesport Office.............................................................................................................................. |
412-343-7166 412-661-1800 |
| Rankin Christian Center/Mon Valley Supports Coordination.......................................................... | 412-464-1545 |
| Staunton Clinic........................................................................................................................................ | 412-928-8687 |
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Providers of Support Groups for Families - Index
The following support groups are chiefly for families, although some are for specific groups, such as children, parents/guardians, siblings, and grandparents. Most of the groups have eligibility requirements.
| ABOARD.................................................................................................................................................. .............................................................................................................................................................. |
800-827-9385 412-334-1788 |
| African Americans with Disabilities, Inc.............................................................................................. | Write for information |
| Allegheny Intermediate Unit 3 (IU 3).................................................................................................... Family Centers................................................................................................................................... Pupil Personnel Services................................................................................................................. (Provides referrals) |
412-394-5700 412-394-5865 412-394-5708 |
| National Alliance for the Mentally Ill of Southwestern PA................................................................ .............................................................................................................................................................. |
800-AMI-SWPA 412-366-3788 |
| American Cancer Society, Southwest Regional Office..................................................................... (Provides list of support groups) |
412-261-4352 |
| American Diabetes Association (ADA), Western PA Area............................................................................................................................... .............................................................................................................................................................. |
800-DIABETES 412-824-1181 |
| American Lung Association of Western PA........................................................................................ (Parents of Children With Asthma — POCWA)............................................................................. |
800-220-1990 714-772-1750 |
| ACHIEVA................................................................................................................................................. (Support groups for parents, fathers, and siblings) |
412-995-5000 |
| Arthritis Foundation, Western PA Chapter.......................................................................................... .............................................................................................................................................................. |
800-522-9900 412-566-1645 |
| Bethesda Center, Inc.............................................................................................................................. (Stroke support group) |
412-731-5633 |
| Burger King Cancer Caring Center...................................................................................................... (Support groups for children and siblings) |
412-622-1212 |
| The Caring Place, A Center for Grieving Children, Adolescents, and Their Families................. | 888-224-HOPE |
| Children and Adults with Attention Deficit Disorders (CHADD)...................................................... | List of affiliates |
| The Compassionate Friends................................................................................................................. (Support groups for bereaved parents, siblings, and grandparents) |
412-835-1105 |
| CONTACT Pittsburgh, Inc..................................................................................................................... (Provides the “Grandma PhonePal”) |
800-578-5100 |
| Crohn’s and Colitis Foundation of America, Inc., Western PA Chapter.......................................................................................................................... (Pediatric support groups)................................................................................................................ |
800-627-6467 412-687-9775 |
| Easter Seal Society of Western PA...................................................................................................... (Support group for siblings) |
412-281-7244 |
| The Epilepsy Foundation of Western PA............................................................................................ (Support group for parents)............................................................................................................... |
800-361-5885 412-261-5880 |
| Family Resources................................................................................................................................... (Support group for parents)............................................................................................................... |
800-641-4546 412-363-1702 |
| Families with Attachment Disordered Children.................................................................................. (Support group for parents and guardians) |
412-366-7113 |
| Focus on Renewal Sto-Rox Neighborhood Corp.............................................................................. (Support group for parents and guardians at high risk of child abuse and neglect) |
412-771-6460 |
| Greater Pittsburgh Chronic Fatigue-Immune Dysfunction Syndrome Support Group........................................................................................... |
724-337-6715 |
| Group for Disabled/Employed Women................................................................................................ .............................................................................................................................................................. |
412-371-7700 724-339-0281 |
| HelpLine................................................................................................................................................... (Provides information on various support groups, and helps get groups started) |
412-578-2450 |
| Huntington’s Disease Society of America, Western PA Chapter.......................................................................................................................... .............................................................................................................................................................. |
888-779-4372 412-833-8180 |
| Intestinal Disease Foundation, Inc....................................................................................................... | 412-261-5888 |
| Jewish Care Coordination Program..................................................................................................... | 412-521-3800 |
| Leukemia Society of America, Inc., Western PA and West Virginia Chapter......................................................................................... .............................................................................................................................................................. |
800-726-2873 412-395-2873 |
| Little People of America, Western PA Chapter.................................................................................. | 412-781-5162 |
| Long Run Children’s Learning Center................................................................................................. | 412-751-9022 |
| Lupus Foundation of America, Western PA Chapter, Inc.................................................................................................................. .............................................................................................................................................................. |
800-800-5776 412-261-5886 |
| UPMC Mercy........................................................................................................................................... | 412-575-5805 |
| The Forever In Our Hearts Support Group.......................................................................................... (Support group for families who have lost a child) |
412-232-8600 |
| MUMS National Parent-to-Parent Network......................................................................................... | 920-336-5333 |
| Multiple Sclerosis Service Society....................................................................................................... .............................................................................................................................................................. |
800-542-2413 412-469-7240 |
| Myasthenia Gravis Association of Western PA, Inc........................................................................... | 412-566-1545 |
| The National Alopecia Areata Foundation......................................................................................... | 415-456-4644 |
| National Multiple Sclerosis Society, Allegheny District Chapter................................................................................................................ .............................................................................................................................................................. |
800-FIGHT MS 412-261-6347 |
| Osteogenesis Imperfecta Foundation, Western PA Chapter.......................................................................................................................... |
724-864-9272 |
| The Partnership....................................................................................................................................... | 412-995-5000 |
| Parent to Parent of Pennsylvania......................................................................................................... .............................................................................................................................................................. |
1-888-727-2706 724-449-8305 |
| People’s Oakland................................................................................................................................... | 412-683-7140 |
| Pittsburgh Vision Services.................................................................................................................... .............................................................................................................................................................. |
800-706-5050 412-682-5600 |
| Scleroderma Agency of Western PA................................................................................................... | 412-681-3650 |
| Self Help Group Network....................................................................................................................... (Maintains database of self help groups) |
412-578-2450 |
| Sewickley Valley Hospital..................................................................................................................... | 412-741-6600 |
| Staunton Clinic........................................................................................................................................ ..................................................................................................................................................EMER |
412-949-7330 412-741-6600 |
| South Hills Interfaith Ministries, Project Hope.................................................................................... (Helps people find the right support group)................................................................................... |
888-HEAL-OCD 412-854-4803 |
| TECH-LINK Program of Pittsburgh...................................................................................................... | 412-237-2767 |
| Three Rivers Center for Independent Living....................................................................................... .............................................................................................................................................................. ......................................................................................................................................................TDD |
800-633-4588 412-371-7700 412-371-6230 |
| Transplant Recipients International Organization (TRIO), Pittsburgh Chapter............................................................................................................... |
412-621-4035 |
| Mental Health America-Allegheny County.......................................................................................... | 412-391-3820 |
| United Ostomy Association, Pittsburgh Chapter................................................................................ | 412-261-3937 |
| University of Pittsburgh Generations Together....................................................................................................................... |
412-648-7157 |
| Ventilator Assisted Children/Home Program, Children’s Hospital of Pittsburgh..................................................................................................... .............................................................................................................................................................. |
412-692-6494 412-692-6495 |
| Western PA Chapter of the Juvenile Diabetes Foundation.............................................................. | 412-471-1414 |
| Western PA Tourette Syndrome Association..................................................................................... | 412-331-8455 |
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Providers of Psychological Counseling - Index
| Allegheny University Hospitals............................................................................................................. Allegheny General Hospital............................................................................................................. Allegheny Valley Hospital................................................................................................................ |
412-359-3131 412-359-3131 724-226-7230 |
| Children’s Hospital of Pittsburgh.......................................................................................................... Family Care Connection................................................................................................................... Primary Care Center.......................................................................................................................... |
412-692-5325 412-692-5325 412-692-6000 |
| The Children’s Institute.......................................................................................................................... | 412-521-9000 |
| The Watson Institute............................................................................................................................... | 866-893-4751 |
| Holy Family Institute............................................................................................................................... | 412-766-9020 |
| Interim Pediatrics.................................................................................................................................... Interim Health Care, Mental Health Department........................................................................... |
412-683-2227 412-683-2227 |
| Little People of America, Western PA Chapter.................................................................................. | 412-781-5162 |
| Mon-Yough Community Services, Inc................................................................................................. Crisis/Intake........................................................................................................................................ |
412-675-8585 412-675-8480 |
| Samaritan Counseling Center of Western PA.................................................................................... | 412-741-7430 |
| Sewickley Valley Hospital..................................................................................................................... Staunton Clinic................................................................................................................................... ..................................................................................................................................................EMER |
412-741-6600 412-749-7330 412-741-6600 |
| Sickle Cell Society, Inc.......................................................................................................................... | 412-371-0628 |
| South Hills Health System..................................................................................................................... .............................................................................................................................................................. |
800-368-4663 412-469-7171 |
| UPMC Health System............................................................................................................................ Western Psychiatric Institute and Clinic (WPIC)........................................................................... Center for Overcoming Problem Eating.................................................................................... STAR (Services for Teens at Risk) Center............................................................................... .............................................................................................................................................................. |
412-647-8762 412-624-5420 412-624-5420 412-624-1000 412-624-5170 |
| The Wesley Institute, Inc., Wesley Highland Services...................................................................... | 412-885-7017 |
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Providers of Respite Care - Index
Having a child with special needs doesn’t mean parents have to give up a social life or time for themselves. Whether it is for a few hours - or a few days - respite care services provide the support and relaxation that many caregivers need. Contact the following agencies for more information about specific respite care services - and how they can help you and your family. (Some agencies may have specific eligibility criteria.)
| Achieva..................................................................................................................................................... | 412-995-5000 |
| The Children's Institute.......................................................................................................................... | 412-420-2400 |
| The Watson Institute............................................................................................................................... CareBreak........................................................................................................................................... |
866-893-4751 412-749-2345 |
| The Emmaus Community...................................................................................................................... | 412-381-0277 |
| Focus on Renewal Sto-Rox Neighborhood Corporation.................................................................. | 412-771-6460 |
| Interim Pediatrics.................................................................................................................................... | 412-683-2227 |
| Liken Health Care, Inc............................................................................................................................ | 412-816-0113 |
| Mainstay Life Service, Inc...................................................................................................................... | 412-344-3640 |
| McGuire Memorial................................................................................................................................... .............................................................................................................................................................. |
412-734-0134 724-843-3400 |
| Multiple Sclerosis Service Society....................................................................................................... .............................................................................................................................................................. |
800-542-2413 412-469-7240 |
| National Multiple Sclerosis Society, Allegheny District Chapter................................................................................................................ .............................................................................................................................................................. |
800-FIGHT MS 412-261-6347 |
| PLEA......................................................................................................................................................... | 412-243-3464 |
| Staff Builders Health Care Services.................................................................................................... | 412-781-4260 |
| VNA HealthCare Services..................................................................................................................... .............................................................................................................................................................. |
888-696-8773 412-256-6910 |
| Access to Respite Care and Help (ARCH)......................................................................................... ARCH is a national resource center and national respite locator service. |
800-773-5433 |
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Providers of Recreational Programs, Playgroups, and Camps - Index
The following agencies provide recreational programs and activities, and playgroups. Others offer toys (many designed for children with special needs) that parents and guardians can loan or buy. To receive many of the resources, families must meet eligibility criteria.
| Allegheny County Special Olympics................................................................................................... | 412-279-5450 |
| Arthritis Foundation, Western PA Chapter.......................................................................................... .............................................................................................................................................................. |
800-522-9900 412-566-1645 |
| Autism Society of Pittsburgh................................................................................................................. | 724-856-7223 |
| Umbrella Services for Advancing Autistic Children - SPEAK Program............................................................................................... |
724-865-7223 |
| Blind Outdoor Leisure Development (BOLD), Western PA......................................................................................................................................... |
412-521-4385 |
| Challenger Baseball Program.............................................................................................................. | 412-734-9174 |
| Child’s Way............................................................................................................................................. | 412-365-6065 |
| The Children’s Institute.......................................................................................................................... | 412-420-2400 |
| Citizen Care, Inc...................................................................................................................................... | 412-787-2350 |
| City of Pittsburgh Citiparks.................................................................................................................... .............................................................................................................................................................. |
412-344-5864 412-622-7353 |
| The Watson Institute............................................................................................................................... | 800-922-4226 |
| Focus on Renewal Sto-Rox Neighborhood Corporation.................................................................. | 412-771-6460 |
| HelpLine................................................................................................................................................... | 412-578-2450 |
| Holy Family Institute............................................................................................................................... | 412-766-9020 |
| Jewish Community Center.................................................................................................................... | 412-521-8011 |
| Mainstay Life Service, Inc...................................................................................................................... | 412-344-3640 |
| The Make-A-Wish Foundation of Western PA................................................................................... .............................................................................................................................................................. |
412-471-9474 800-676-9474 |
| Miracle League of Southwestern PA................................................................................................... | 724-831-7392 |
| National Kidney Foundation of Western PA....................................................................................... | 412-261-4115 |
| National Multiple Sclerosis Society, Allegheny District Chapter................................................................................................................ .............................................................................................................................................................. |
800-FIGHT MS 412-261-6347 |
| People’s Oakland................................................................................................................................... | 412-683-7140 |
| Riding for the Handicapped of Western PA........................................................................................ | 724-443-4485 |
| Sewickley Valley Hospital..................................................................................................................... Staunton Clinic................................................................................................................................... ..................................................................................................................................................EMER |
412-741-6600 412-749-7330 412-741-6600 |
| Three Rivers Adaptive Sports............................................................................................................... | 412-749-2281 |
| Together for Retarded Youth (TRY), Inc.............................................................................................. .............................................................................................................................................................. |
724-935-4910 724-935-1257 |
| U.S. Army Corps of Engineers, Pittsburgh District............................................................................. | 412-395-7500 |
| Variety the Children's Charity............................................................................................................... | 412-747-2680 |
| Verland Foundation, Inc......................................................................................................................... | 412-741-2375 |
| Western PA Chapter of the Juvenile Diabetes Foundation.............................................................. | 412-471-1414 |
| YWCA of Greater Pittsburgh................................................................................................................. .............................................................................................................................................................. |
412-255-1243 412-255-1247 |
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Providers of Toys - Index
| Pittsburgh Toy Lending Library............................................................................................................. | 412-682-4430 |
| Toys ‘R’ Us Toy Guide for Differently-Abled Kids!............................................................................. Toy guide designed for “differently-abled” children. Each toy is extensively evaluated and identified with one or more skill-building symbols in the areas of: Auditory, Language, Visual, Tactile, Gross Motor, Fine Motor, Social Skills, Self-Esteem, Creativity, and Thinking. Call for catalog. |
800-732-3298 |
| Lekotek Toy Resource Helpline........................................................................................................... National Lekotek Center...........................................................................................................TTD 2100 Ridge Ave., Evanston, IL 60201-2796 Provides general information on toy adaptation. Call for individualized consultation on toys and play. |
800-366-PLAY 800-573-4446 |
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Providers of Camps - Index
(Children must meet eligibility criteria)
| American Diabetes Association (ADA), Western PA Area............................................................... .............................................................................................................................................................. |
800-DIABETES 412-824-1181 |
| American Lung Association of Western PA........................................................................................ | 800-220-1990 |
| Arthritis Foundation, Western PA Chapter.......................................................................................... .............................................................................................................................................................. |
800-522-9900 412-566-1645 |
| Bethesda Center, Inc.............................................................................................................................. | 412-731-5633 |
| The Caring Place, A Center for Grieving Children, Adolescents, and Their Families..................................................................................................... |
888-224-HOPE |
| Conductive Education of Pittsburgh..................................................................................................... | 412-731-3070 |
| The Epilepsy Foundation of Western PA............................................................................................ .............................................................................................................................................................. |
800-361-5885 412-261-5880 |
| Muscular Dystrophy Association (MDA) of Southwestern and Midwestern PA............................ | 412-823-4094 |
| National Kidney Foundation of Western PA....................................................................................... | 412-261-4115 |
| Sewickley Valley Hospital..................................................................................................................... Staunton Clinic.......................................................................................................................EMER |
412-741-6600 412-741-6600 |
| Spina Bifida Association of Western PA............................................................................................. .............................................................................................................................................................. |
800-243-5787 724-394-9600 |
| Together for Retarded Youth (TRY), Inc.............................................................................................. .............................................................................................................................................................. |
724-935-4910 724-935-1257 |
| Variety the Children's Charity............................................................................................................... | 412-747-2680 |
| Western Pennsylvania School for the Deaf........................................................................................ | 412-371-7000 |
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Camp Publications and Websites - Index
| American Camping Association (ACA)............................................................................................... 5000 State Rd., 67 N, Martinsville, IN 46151-7902 Publishes the “Guide to ACA-Accredited Camps”, which features more than 2,000 summer programs, including camps in Pennsylvania and across the nation for children with special needs and their families. Also listed in the book are a growing number of “inclusion camps” - where traditional camps welcome individuals with disabilities. Contact the ACA’s Retail and Wholesale Book Sales Department for your copy. Website: www.aca-camps.org E-mail: msnider@aca-camps.org |
800-428-CAMP |
| Helpline.................................................................................................................................................... Publishes an annual spring guide to summer programs and camps, which is published in The Pittsburgh Post-Gazette. Call for a copy or more information. |
412-578-2450 |
| The Special Kids Network..................................................................................................................... Offers a free publication listing numerous camps statewide for children with special needs. Call for a copy or more information. |
800-986-4550 |
| Christian Camping International/USA Website: www.gospel.net/cci |
|
| Peterson’s Education Center Website: www.petersons.com |
|
| KidsCamps Homepage Website: www.kidscamps.com |
|
| The Camp and Conference Homepage Website: www.camping.org |
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Transportation
Added transportation safety measures may be required for some infants and children with medical conditions or disabilities. Following are information and resources concerning car seats; airbags; handicapped parking permits; car and van purchases and rentals; bus, train, and air transportation; Medical Assistance transportation; the Travel Training Program; and Driver’s Education classes. You also may want to consult your child’s physician, therapist, or the hospital discharge planner for any questions or concerns.
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Car Seat Safety
The Pennsylvania state law - The Child Passenger Protection Act - requires that all drivers transporting children ages birth-4 years use an approved child passenger restraint system. Violators may be fined $25 plus fees and court costs. Older children must be secured with a safety belt. Children with medical conditions or disabilities may require special considerations or adaptions for transportation safety. A combination of education, planning, access to information, and appropriate safety devices will enable families to meet these needs.
| The National Easter Seal Society........................................................................................................ The Society’s KARS (Kids Are Riding Safe) Program helps families find an appropriate restraint system for their child. Call for more information. |
800-221-6827 |
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Passenger Airbags
Airbags are lifesavers for adults but can be deadly for infants and children. An airbag can inflate with explosive force in a split second, even in low-speed, fender-bender accidents.
For this reason, all infants and children should ride in the back seat. However, some parents whose children have special medical needs (e.g., tracheostomy or an apnea monitor) are uncomfortable with their child being out of sight and reach. The best solution is to have another adult in the car who can sit next to the child. If this is not possible, parents can purchase a special mirror that allows the driver a good view of the child. These mirrors are available from major retail stores that sell toys and other children’s products.
Parents who want their children to ride in the front seat should be sure the airbag is turned off. Some vehicles have switches for this; others require a mechanic’s assistance. Parents also should seek the advice of their child’s pediatrician before placing the child up front. The U.S. Department of Transportation urges that all children under the age of 12 ride in the rear seat. However, there may be times when this is not possible.
The following can help prevent airbag injury to an older child:
● Move the seat back as far as possible.
● See that the child is properly restrained.
● Have the child sit upright against the seat back.
● Do not permit the child to lean forward towards the floor, dashboard, or radio dials.
● Do not let the child fall asleep with the head or upper body falling forward.
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Agencies with More Information About Car Seat Safety - Index
| The American Academy of Pediatrics................................................................................................. PO Box 927, Elk Grove Village, IL 60009-0927 |
847-228-5005 |
| The National Highway Traffic Safety Administration, Auto Safety Hotline............................................................................................................................ |
800-424-9393 |
| The Pennsylvania Chapter of the American Academy of Pediatrics...................................................................................................................... |
800-CAR-BELT |
| Safe Ride News Publications............................................................................................................... Website: www.twbc.com |
206-364-5696 |
| Shelness Productions............................................................................................................................ (Provides literature and videos) |
910-774-1578 |
“Handicapped” Parking Permits
Families whose children have special medical needs or disabilities may qualify for a “Handicapped” Parking Permit from the Pennsylvania Department of Transportation (PennDot). You can request a mirror tag (free of charge) or a license plate (currently $15). If you use more than one vehicle, you can order both - or use the mirror tag in both cars.
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A Parking Permit application can be obtained at your:
● Local Hospital (Ask your hospital social worker for a form.)
● Local Drivers’ Testing Center (In Pittsburgh, centers are located downtown at the State Office Building,
300 Liberty Ave.; in Allison Park at the Duncan Manor Shopping Center; in Bridgeville at Chartiers Village
Shopping Center; in East Liberty at Motor Square Garden; and in New Kensington at 1600 Greensburg Rd.)
● Local State Representative Office (Contact the office and request an application be mailed to you.)
● Local AAA (Call and request Form MVI 45.)
After you have received an application, fill in the appropriate section, let your child’s physician complete the form, and forward it to Harrisburg.
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Purchasing or Renting an Accessible Van (or Specially Adapted Vehicle)
Cars, vans, and utility vehicles can be adapted to accommodate various needs, with hand controls, wheelchair lifts, and other options. These adapted vehicles, like an automobile, can be purchased new or used, or leased.
| Access Services, Unlimited................................................................................................................... Access Services, Unlimited, is a company devoted exclusively to the sale and conversion of accessible vehicles, including your current vehicle. The services are personal and individualized. Call and make an appointment to discuss your needs and learn about the options available. |
412-363-2935 |
| Directory of Accessible Van Rentals................................................................................................... Provides information on renting a van or adapted car. |
360-694-2462 |
| Commercial Car Rental AVIS............................................................................................................... To rent a vehicle for individuals with special needs, commercial.....................................Hertz rental car companies require a minimum of 24-hour advance notice. Some agencies have free premium service privileges for frequent customers. |
800-331-1212 800-654-3131 |
| Ford Motor Company’s Mobility Motoring Program........................................................................... This program offers individuals or families with disabilities special benefits when a Ford car, truck, or van is purchased or leased, including cash assistance toward the purchase of the vehicle, a cellular phone, and roadside assistance. Other car manufacturers may offer similar programs. Ask about these programs next time you buy or rent a vehicle. |
800-952-2248 |
| Mobility Works......................................................................................................................................... Offer new and used accessible vans. www.mobilityworks.com |
need phone number |
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Port Authority Transit of Allegheny County (PAT)
Children ages six and under can ride PAT buses free of charge. Those ages 7-12 pay half fare.
| PAT’s Reduced Fare Program for Persons with Disabilities........................................................... Enables individuals (teens and adults) with physical disabilities (including vision and hearing impairments) or mental disabilities to ride half-fare during off-peak hours. Full fare is required during rush hours. |
412-255-1356 |
PAT drivers are trained to assist passengers who need help boarding or leaving a bus. On weekends, all PAT buses are kneeling buses. During the weekday, this varies based on the route and time. Passengers can request bus hailers (signage that enables those with visual impairments or blindness to hail a bus ride) by calling 800-221-9282.
| PAT’s Services for Disabled Passengers Department..................................................................... Call for questions regarding public transportation in Allegheny County for children with special needs. |
412-237-7000 |
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ACCESS Transportation Services
| ACCESS Transportation Services....................................................................................................... ACCESS is a door-to-door, advance-reservation, shared-ride..........................................TDD transportation system sponsored by Port Authority Transit (PAT) of Allegheny County. The service is available for individuals with disabilities, regardless of age, who are unable to independently use PAT bus services. Children under the age of 10 must be accompanied by an adult. |
412-562-5353 800-654-5984 |
ACCESS provides service seven days a week, from 6 a.m. to midnight. ACCESS drivers can assist riders in boarding and leaving the vehicle. Riders must make reservations one week in advance and pay for the trip with tickets purchased from ACCESS. Fares are based on mileage.
To apply, children must accompany their parents/guardians in person to PAT’s ACCESS office at 701 Smithfield Street in Downtown Pittsburgh. Office hours are 8 a.m. - 4:30 p.m. Call for more information.
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Medical Assistance Transportation Program (MATP)
| Medical Assistance Transportation................................................................................................... Individuals who are receiving Medical Assistance (MA) and have an MA ACCESS card are entitled to transportation for necessary medical care (including rides to and from MA providers - physicians, dentists, and nurse practitioners). |
412-350-4476 or 1-888-547-6287 |
Please note that it is necessary to register for the program before you or your child can use the service. To be eligible, you must have a valid Pennsylvania Medical Assistance (MA) Card and be an Allegheny County resident.. Transportation is provided only to medical services that are covered by MA.
Enrollment is a three step process
MATP will verify the client’s MA eligibility and complete the MATP Application (usually over the phone).
MATP will mail the client’s application for signature.
Clients must sign application and return it to the MATP Office.
MATP is required by law to provide the least costly transportation available, including public transportation, mileage reimbursement, or para-transit shared-ride system. Agency decisions about the type of transportation service are based on client’s physical and/or behavioral health condition, health needs, physicians’ recommendations, and availability of public transportation between the trip origination and destination.
If you have problems with the MA Transportation Program, call:
The Allegheny County Department of Human Services,
Office of Community Services
Service Administrator’s Office
412-350-5775
Source: http://www.alleghenycounty.us/uploadedFiles/DHS/About_DHS/Publications/Brochures/MATPbrochure.pdf
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Travel Training
| Allegheny Intermediate Unit 3, Career Awareness Program........................................................... Travel Training is a program for high school students with disabilities that provides comprehensive, systematic instruction on how to use accessible public transportation. The goal of Travel Training is to give students the skills needed to use public transportation safely and confidently. |
412-394-5849 |
Travel Training brings compliance to the Americans with Disabilities Act (ADA), which mandates that individuals with disabilities have access to public transportation; and the Individuals with Disabilities Education Act (IDEA), which requires that public schools provide Transition services to students with disabilities to help prepare them for life after graduation.
Call for more information.
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Extended or Cross-County Travel
Air Travel
Before making your flight reservation, ask the airline about its policies regarding travel with small children. Explain that your child has special needs and/or will be using medical equipment. If your child needs a wheelchair, request a wheelchair runner. If you are making a connecting flight, ask the airline for added assistance. Check to see if full fare must be paid to guarantee a child’s seat.
Here are some other tips for safe air travel with children:
● For a child less than 20 pounds, use a rear-facing car seat.
● For a child 20-40 pounds, use a forward-facing car seat.
● For a child more than 40 pounds, use the airplane seat belt.
● Do not use a booster seat - these are unsafe on planes.
AMTRAK trains have special sleeping quarters (accommodating two people) designed for passengers with special needs. You may want to inquire if the dining car is located on the same level as your room.
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Driver’s Education for Students with Disabilities
Students with disabilities who would like to take driver’s education can contact the following agencies for more information:
| Driver Evaluation Program, HEALTHSOUTH, Harmarville Rehabilitation Program................................................................................................ Offers assistance to driving candidates with disabilities, including an assessment by an occupational therapist. When appropriate, a driver evaluator can assist the candidate in becoming a safe, responsible driver through the use of compensatory techniques and adaptive equipment. |
412-826-2742 |
| Occupational Therapy Department, The Children’s Institute........................................................... Provides pre-driving screenings to determine eligibility for driving lessons. |
412-420-2400 |
| Driver’s Education Department, West Penn AAA.............................................................................. Offers driving lessons. Drivers must provide their own vehicle and appropriate adaptive equipment. |
412-243-0600 |
| Office of Vocational Rehabilitation (OVR)........................................................................................... May fund driving lessons if a person with special needs must drive in order to obtain employment. Funding also may be available (depending upon the situation) through workers’ compensation, and health and automobile insurance companies. |
800-442-6371 |
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Other Transportation Providers and Resources - Index
| Allegheny County Department of Human Services........................................................................... Office of Community Services, Medical Assistance Transportation Program.......................... |
412-350-5706 412-355-4476 |
| American Cancer Society, Southwest Regional Office..................................................................... (Volunteer transportation and financial reimbursement) |
412-261-4352 |
| Automated Health Systems, Inc............................................................................................................ .............................................................................................................................................................. |
800-543-7633 724-543-7633 |
| Children’s Hospital of Pittsburgh.......................................................................................................... Transport Team.................................................................................................................................. |
412-692-5325 |
| Muscular Dystrophy Association (MDA) of Southwestern and Midwestern PA............................ | 412-823-4094 |
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Residential Care
There are times when parents or guardians decide that a child can benefit from care outside the home. Residential care - an alternative living arrangement - is one option.
Services can be provided on an as-needed, temporary, or permanent basis. A valuable source of information for these services is the 0ffice of Behavioral Health or Office of Mental Retardation/ Developmental Disabilities. The Service Coordinator (Office of Behavioral Health) or Independent Supports Coordinator (Office of Mental Retardation/Developmental Disabilities) assigned to your child will provide assistance in finding schools and organizations that best meet your child’s needs, and make you aware of available funding sources.
Placement is dependent on the needs of the child and the family’s wishes, as well as on the availability of openings within the school or organization. If you are not registered with a Base Service Unit, contact your county’s mental health/mental retardation association to find out which location serves your community. You also may contact the placement director at the residential care facility you are interested in. The director can answer your questions and send you a packet of information.
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Schools and Organizations Offering Residential Options - Index
| Allegheny Valley School....................................................................................................................... | 412-299-7777 |
| ACHIEVA................................................................................................................................................. | 412-995-5000 |
| Children’s Aid Home for Special People, Inc..................................................................................... | 412-247-9400 |
| The Children’s Institute.......................................................................................................................... | 412-420-2400 |
| Citizen Care, Inc...................................................................................................................................... | 412-787-2350 |
| Community Human Services Corporation.......................................................................................... Domiciliary (Dom) Care—Full Care CRR...................................................................................... Supported Housing............................................................................................................................ |
412-621-4707 412-687-1900 412-682-6990 |
| The Emmaus Community...................................................................................................................... | 412-381-0277 |
| Goodwill Industries of Pittsburgh.......................................................................................................... | 412-437-9878 |
| Mainstay Life Service, Inc...................................................................................................................... | 412-344-3640 |
| McGuire Memorial................................................................................................................................... .............................................................................................................................................................. |
724-843-3400 412-734-0134 |
| Mon-Yough Community Services, Inc................................................................................................. (Supervised housing) Crisis/Intake................................................................................................. |
412-675-8585 412-675-8480 |
| The Pressley Ridge Schools................................................................................................................ | 412-321-6995 |
| Southwinds, Inc....................................................................................................................................... | 412-279-4900 |
| Step-By-Step, Inc.................................................................................................................................... | 412-381-3800 |
| Verland Foundation, Inc......................................................................................................................... | 412-741-2375 |
| Western Pennsylvania School for Blind Children.............................................................................. | 421-621-0100 |
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Disabilities and the Law
Knowing Your Rights
● Early Intervention
Early Intervention refers to a statewide system of services and supports designed to help infants and children
with, or at risk for, developmental delay or disability. Eligible infants and toddlers - birth-3 years - and their
families are entitled to Early Intervention services, including screening, multi-disciplinary evaluation, on-
going assessment, and the development of an Individualized Family Service Plan (IFSP). All essential
services, plus transportation, are identified in the IFSP.
The Pennsylvania Early Intervention System (PEIS) is implemented in compliance with the Pennsylvania
Early Intervention Service System Act - PA Act 212-1990 - and IDEA (Individuals with Disabilities Education
Act) Amendments of 2004 under Public Law108-446, Part C. (See page 10 for more information on Early
Intervention.)
City of Pittsburgh-Allegheny County Task Force on Disabilities........................................................ 412-255-2102
● Family and Medical Leave Act
The Family and Medical Leave Act of 1993 is a federal law that makes it possible for families to take up to 12
weeks of unpaid leave from their jobs in the event of a serious medical situation. The law applies to
companies that have at least 50 full-time employees, and guarantees that an employee on leave will be able
to return to his or her job - or a comparable one.
● The Americans With Disabilities Act
The Americans with Disabilities Act - or ADA - gives civil rights protection to individuals with disabilities. It
guarantees equal opportunity for individuals with disabilities in public accommodations, employment,
transportation, state and local government services, and telecommunications.
To obtain information and publications about the ADA, call one of the following government agencies:
| United States Department of Justice................................................................................................... ......................................................................................................................................................TDD |
800-514-0301 800-514-0383 |
| Architectural and Transportation Barriers Compliance Board............................................................................................................................. ......................................................................................................................................................TDD |
800-872-2252 800-993-2822 |
| Equal Employment Opportunity Commission..................................................................................... ......................................................................................................................................................TDD |
800-669-3362 800-800-3302 |
| United States Department of Transportation...................................................................................... ......................................................................................................................................................TDD |
202-366-1656 202-366-4567 |
● Supplemental Security Income (SSI)
(See page 45 for more information)
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If You Think You Need an Attorney or Legal Advocate—Index
A number of organizations in the Pittsburgh area offer legal information and assistance or can provide appropriate referrals.
| Client Assistance Program.................................................................................................................... Provides legal advice and conflict resolution for people with..................................................... disabilities who are involved with programs that receive funding under the Rehab Act (e.g., Office of Vocational Rehabilitation, Blindness and Visual Services, Supplemental Employment Program, and Centers for Independent Living). |
800-525-7223 412-363-7223 |
| CONNECT Information Service............................................................................................................ Offers legal information and advocacy for families with............................................................... children in Early Intervention and Special Education. |
800-692-7288 717-657-5899 |
| Disabilities Rights Network PA............................................................................................................. Provides legal assistance and representation free of charge to persons with disabilities, attorneys, and organizations. |
412-391-5225 |
| Education Law Center—PA, Pittsburgh Office................................................................................... Provides information, assistance, and representation to resolve problems with education for children with special needs. |
412-391-5225 |
| Interagency Cordero Work Group......................................................................................................... Helps families resolve conflicts and problems with...................................................................... their child’s Individual Education Plan. |
800-222-7372 717-657-5983 |
| Learning Disabilities Association (LDA) of America......................................................................... Provides educational and legal advocacy, and recommends action on pending legislation that may affect children with learning disabilities and their families. Website: www.ldanatl.org |
412-341-1515 |
| One to One: Citizen Advocacy.............................................................................................................. Promotes the protection and advocacy of people with special needs. Matches people with volunteers who act as helpers and companions. |
724-775-4121 |
| Open Doors for the Handicapped of PA, Inc., Pittsburgh Chapter............................................................................................................................. Advocates to promote independence in daily living for persons with disabilities. Areas of special interest include transportation, employment, and architectural barriers. |
412-766-3985 |
| Pennsylvania Health Law Project........................................................................................................ Provides assistance to persons who need help in obtaining health services.......................... |
800-274-3258 412-434-5779 |
| The President’s Committee on Employment of People with Disabilities, Job Accommodation Network (JAN)......................................................................... International toll-free consulting service for questions............................................................ about the Americans with Disabilities Act (ADA), Family and Medical Leave Act, and accommodations for people with disabilities. Assists in interpreting the laws for job accommodation and employability of people with functional limitations. |
800-526-7234 800-DIAL JAN |
| Mental Health American-Allegheny County....................................................................................... Provides a comprehensive education advocacy program and legal advocacy, including referrals and assistance. |
412-391-3820 |
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Other Legal Resources - Index
| Lawyer Referral Service, Allegheny County Bar Association.......................................................... | 412-261-5555 |
| National Center for Law and the Handicapped.................................................................................. | 219-283-4536 |
| Neighborhood Legal Services.............................................................................................................. | 412-255-6700 |
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How to Find Help with Wills, Trusts, and Other Legal Concerns - Index
One important concern that parents and caregivers of children with special needs face is how to plan their estate to best provide for their child’s future security. According to the National Information Center for Children and Youth with Disabilities (NICHCY), parents often ask: What will our son or daughter do when we are no longer here to provide help when it’s needed? Where and how will our child live? Will he or she have enough money to sustain a decent quality of life?
In terms of estate planning, parents may wonder: How do I know what I am planning is going to work? Do I have enough money to hire a lawyer and write a will? Do I even have anything to leave my children?
These are difficult questions - and the following resources can help provide the answers:
| Estate Planning, Volume 2, Number 1, 1992 CONNECT Information Service............................................................................................................ A publication from NICHCY that includes information on estate planning, establishing a will, The Special Needs Trust, Master Trusts, writing the letter of intent, and a worksheet for costing out expenses. Call for your free copy. |
800-692-7288 |
| Estate Planning for Persons with Disabilities (EPPD)...................................................................... A national resource for parents and professionals. EPPD presents free two-hour educational seminars sponsored by local groups across the country in order to teach families how to do Life and Estate Planning. Puts families in contact with local professionals who have specialized knowledge vital to preparing an estate plan. Keeps the costs of estate planning down by contracting with professionals for a package price. |
800-448-1071 |
| The Family Trust..................................................................................................................................... ACHIEVA, 711 Bingham St., Pittsburgh, PA 15203 A separate non-profit corporation under the auspices of ARC-Allegheny, designed to implement family goals and services for any individual with a disability upon the death of caretakers. Clients receive assistance in fulfilling pre-established living plans, handling personal finances, estate planning, advocacy, and recommendations of attorneys/financial planners. |
412-995-5000 |
| Special Needs Agency 800-233-1957 183 Leader Heights Road, PO Box 2726, York, PA 17405......................................................... Provides estate planning services for families who have members with disabilities. Conducts seminars on a regular basis in Pennsylvania for special education units, sheltered workshops, group home providers, and national advocacy groups. Addresses the many complex issues associated with estate planning. |
717-741-0911 |
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Guidelines for Communicating about People with Disabilities
Put the Person First
It is important to identify the person first rather than the disability by saying a person with a disability or a person who is deaf, rather than a disabled person or a deaf person.
The terms afflicted with, suffering from, cripple, and victim are considered unacceptable because they emotionalize and sensationalize disability in a way that induces pity.
The phrase physically challenged is relentlessly cutesy and cheery. The word handicapped is derived from the image of a person with a disability who is on the street with a cap in his/her hand, begging for money — which implies this is all he/she is capable of doing. Except when citing law, regulations or environmental conditions (i.e., The stairs are a handicap to him or her), it is a less preferred term. Physical disability is the preferred usage.
Uses a Wheelchair - Not Is Wheelchair-bound
Say he or she uses a wheelchair, rather than is wheelchair bound or confined to a wheelchair. Without the use of a wheelchair the person would be confined or bound.
Blindness vs. Partial Vision
Blindness refers to a total loss of vision. Partial vision may be referred to as partial sight or visual impairment.
Deafness vs. Partial Hearing Loss
Deafness refers to a total loss of hearing. Partial hearing loss may be referred to as a hearing impairment.
Use Non-Verbal - Not Mute or Dumb
A person who cannot speak is the preferred phrase for describing individuals who are non-verbal. Terms such as deaf-mute and deaf-dumb are considered degrading, as well as giving the implication that all non-verbal persons are deaf, which may not be true. It also can imply that if someone is deaf, they must be unintelligent.
Use Congenital Disability - Not Birth Defect or Disease
A congenital disability has existed since birth. It may or may not be related to disease.
Use Learning Disability
A learning disability is a disorder affecting the understanding or use of spoken or written language.
Use Mental Illness or Mental Disorder - Not Neurotic, Psychopathic, or Schizophrenic
Mental disorder is a comprehensive term that describes any of the recognized forms of mental illness or severe emotional disorders.
Use Mental Retardation or Developmental Delay - Not Mentally Defective
Mental retardation or developmental delay is a condition causing a person to have significantly below-average general intellectual functioning. Labels such as mentally defective or deficient are unacceptable.
Use Speech Impairment
Speech impairment refers to limited or difficult speech patterns.
(Source: Complied from the Three Rivers Center for Independent Living, the United Cerebral Palsy Association, and The Ragged Edge magazine.)
(Source: Information in this section came from various sources, including the Pennsylvania Department of Health. The sections on Transportation and Disabilities and the Law were compiled and edited by by Nancy Kennedy, RS, BSN, and a consultant.)
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