
I'll never forget the day the pediatrician told me that my four-month-old son Mark had cerebral palsy.
My husband Dave and I were not surprised by the diagnosis - Mark had
had many serious health problems since birth. Even so, we were
stunned by the confirmation and realized that our lives had changed
forever.
In the trying weeks that followed, Dave and I began preparing a
long-term healthcare plan for Mark. We wanted to know everything
our community could provide for him - not just for Mark's infancy but
for his future as a toddler, boy, and teenager.
What we didn't expect was the difficult, often confusing, and sometimes
scary process involved in gathering information and advice.
Only after endless phone calls - collecting bits and pieces of
information from social workers, agencies, and support groups - did we
finally assemble the needed puzzle pieces.
This region is rich with resources for children with special needs, but
the entire scope of these agencies, services, and benefits has never
been available for parents in a single, comprehensive package.
What we needed then you now hold in your hands.
Thanks to The Information Collaborative, we parents can begin to see
the big picture of what our community offers. Parents like myself
have been involved in the book's creation and production, directing its
content and making sure it reads in a user-friendly way. This
guide also will help professionals become more knowledgeable about
community resources - and give them a useful tool in their work with
parents.
Knowledge is power. These are the words that have provided Dave
and me with a sense of control as parents of a child with special
needs. It is my pleasure to pass on this valuable resource to you
- and to help empower you to give your child the best of everything.
Tina Calabro
PAGES xi, xii and xiii
Although
many of the organizations in this book are based in Allegheny County, a
number of providers serve all of Western Pennsylvania. The
following are some of the major agencies in Southwestern Pennsylvania for residents outside of Allegheny County:
Armstrong County
The ARC........................................................................................................................................................ 724-548-3451
ARIN Intermediate Unit (IU 28)................................................................................................................... 800-272-2746
.................................................................................................................................................................. 724-463-5300
Children and Youth Agency........................................................................................................................ 724-548-3466
County Action Agency................................................................................................................................. 800-468-7771
County Assistance Office............................................................................................................................ 800-424-5235
.................................................................................................................................................................. 724-543-1651
Mental Health/Mental Retardation............................................................................................................. 724-548-3451
Office of Vocational Rehabilitation............................................................................................................ 800-442-6379
VNA (Visiting Nurses Association)............................................................................................................ 800-245-3042
Beaver County
The ARC........................................................................................................................................................ 724-775-1603
Children and Youth Agency........................................................................................................................ 724-775-4510
County Assistance Office............................................................................................................................ 724-773-7300
Lifesteps, Inc................................................................................................................................................. 724-774-6494
Mental Health/Mental Retardation............................................................................................................. 724-847-6225
Office of Vocational Rehabilitation............................................................................................................ 800-442-6379
Samaritan Counseling Center of Western PA......................................................................................... 724-775-4673
Volunteer Action Center of Beaver County, Inc....................................................................................... 724-728-3900
Butler County
The ARC........................................................................................................................................................ 724-282-1500
CHADD.......................................................................................................................................................... 412-735-2247
Children and Youth Agency........................................................................................................................ 724-284-5156
County Assistance Office............................................................................................................................ 724-284-8844
Mental Health Information, Referral, or Educational Advocacy............................................................. 724-287-1965
Mental Health/Mental Retardation............................................................................................................. 724-284-5114
Office of Vocational Rehabilitation............................................................................................................ 800-442-6379
Samaritan Counseling Center of Western PA......................................................................................... 724-287-2567
United Way.................................................................................................................................................... 724-287-3126
VNA (Visiting Nurses Association)............................................................................................................ 800-245-3042
Fayette County
The ARC........................................................................................................................................................ 724-483-4372
CHADD (Fay-West Area)............................................................................................................................ 724-439-9407
Children and Youth Agency........................................................................................................................ 724-430-1283
Community Action Agency.......................................................................................................................... 724-437-6050
County Assistance Office............................................................................................................................ 724-439-7015
Head Start...................................................................................................................................................... 724-430-4818
HelpLine........................................................................................................................................................ 800-427-INFO
.................................................................................................................................................................. 724-437-8888
Intermediate Unit 1 (IU 1)............................................................................................................................ 800-328-6481
.................................................................................................................................................................. 724-938-3241
Mental Health/Mental Retardation............................................................................................................. 724-430-1370
Office of Vocational Rehabilitation............................................................................................................ 800-442-6367
Open Doors for the Handicapped of PA, Inc............................................................................................ 724-437-7755
Greene County
The ARC........................................................................................................................................................ 724-627-5511
Children and Youth Agency........................................................................................................................ 724-852-5217
County Assistance Office............................................................................................................................ 724-627-8171
Head Start...................................................................................................................................................... 800-443-1943
.................................................................................................................................................................. 724-852-1943
HelpLine........................................................................................................................................................ 800-433-1943
.................................................................................................................................................................. 724-852-1943
Intermediate Unit 1 (IU 1)............................................................................................................................ 800-328-6481
.................................................................................................................................................................. 724-938-3241
Office of Vocational Rehabilitation............................................................................................................ 800-442-6367
Indiana County
ARIN Intermediate Unit (IU 28)................................................................................................................... 800-272-2746
.................................................................................................................................................................. 724-463-5300
Children and Youth Agency........................................................................................................................ 724-465-3895
County Assistance Office............................................................................................................................ 724-357-2900
Department of Human Services................................................................................................................. 724-463-8200
Lifesteps, Inc................................................................................................................................................. 724-349-1122
Mental Health Information, Referral, or Educational Advocacy............................................................. 724-465-7782
Office of Vocational Rehabilitation............................................................................................................ 800-762-4223
VNA (Visiting Nurses Association)............................................................................................................ 724-463-6340
Lawrence County
The ARC........................................................................................................................................................ 724-658-8515
CHADD.......................................................................................................................................................... 724-658-7591
Children and Youth Agency........................................................................................................................ 717-299-7925
Contact E.A.R.S............................................................................................................................................ 724-658-5520
County Assistance Office............................................................................................................................ 724-656-3000
Mental Health/Mental Retardation............................................................................................................. 724-658-2538
Office of Vocational Rehabilitation............................................................................................................ 800-442-6379
Washington County
The ARC........................................................................................................................................................ 724-222-6960
Children and Youth Agency........................................................................................................................ 724-228-6884
County Assistance Office............................................................................................................................ 800-835-9720
.................................................................................................................................................................. 724-223-4300
Head Start...................................................................................................................................................... 724-222-9100
HelpLine........................................................................................................................................................ 800-237-1555
.................................................................................................................................................................. 724-225-9052
Intermediate Unit 1 (IU 1)............................................................................................................................ 800-328-6481
.................................................................................................................................................................. 724-938-3241
Mental Health Information, Referral, or Educational Advocacy............................................................. 724-225-2061
Mental Health/Mental Retardation............................................................................................................. 724-228-6832
Office of Vocational Rehabilitation............................................................................................................ 800-442-6367
United Cerebral Palsy of Southwest PA................................................................................................... 724-225-8145
Westmoreland County
ARC-Westmoreland..................................................................................................................................... 724-837-8159
Case Management and Supports, Inc. (Early Intervention Assistance)............................................... 724-837-1808
CHADD.......................................................................................................................................................... 724-423-5644
Children and Youth Agency........................................................................................................................ 724-830-3300
County Assistance Office............................................................................................................................ 800-238-9094
.................................................................................................................................................................. 724-832-5200
Information and Referral, Helpline............................................................................................................. 800-222-8848
Intermediate Unit (IU 7) (Educational Services Preschool-21 Years).................................................. 724-836-2460
Irwin Down Syndrome Group..................................................................................................................... 724-864-9135
Mental Health/Mental Retardation............................................................................................................. 724-837-1808
Office of Vocational Rehabilitation............................................................................................................ 800-762-4223
One To One Citizen Advocacy................................................................................................................... 724-325-3344
Up with Downs Family Group Latrobe/Greensburg................................................................................ 724-539-2505
Call CONNECT Early Intervention HelpLine at 800-692-7288 for the phone
numbers of more local, state, and national agencies that can help you.